„Hogyan éljünk tovább nélküled? Hogyan lesz fény a mosolyod nélkül?” – az 5 éves kislány meghalt szervátültetésre várva

  A brave five-year-old girl who was waiting for a donor to undergo a life-saving heart transplant has died. The devastated family of Thalia-Beau Wright, who was diagnosed with restrictive cardiomyopathy in 2018, announced yesterday that the youngster had succumbed to the rare illness. Writing on Facebook, her distraught parents from Scarborough, North Yorkshire, said their daughter was 'and will always be the best thing' that ever happened to them. 'How will we ever live without your beautiful heart and soul?' it read. 'How will the world still turn without you in it? Ellie-Mae described how her 'world changed forever' after Thalia-Beau was diagnosed with 'one in a million' restrictive cardiomyopathy on November 16, 2018. The condition is an ultra-rare form of muscle disease which stiffens the ventricles around the heart. Ellie-Mae was told by doctors the only hope for her 'sassy' and 'bubbly' Thalia-Beau was a heart transplant – as the condition currently has no cure or treatment. The devastating diagnosis came after Thalia-Beau was taken to Scarborough Hospital with a suspected common chest infection. Following two days in hospital, the family were preparing to return home after Thalia-Beau was discharged. However, just minutes before they were due to leave, Ellie-Mae described how hospital staff ran down the corridor to stop them. Ellie-Mae said: 'We thought everything was fine and she had been discharged, we were just about to leave. I remember being stopped and told something was wrong with the scans.'sadly the heart condition was too severe and Thalia lost her battle whilst waiting on the heart transplant fly High princess Közzétette: Angels up in heaven xx – 2020. augusztus 25., kedd